When I was about 5, my sister went to an amazing sounding summer camp. Every day when we would pick her up, I couldn’t wait to hear her tell me all about all the art projects and swimming and horse riding she had done and all the friends she had. When I was finally old enough to go to the same camp, I had overwhelming first day of school type nerves and excitement. Even though she had told me all about it for years, I didn’t know exactly what to expect when I got there. Not knowing what to expect is one of the main tent poles of the anxiety I’ve had my whole life, so when the head of camp gathered every single camper together and told us “I’m going to list off all of your names and when you hear your name, your group will cheer for you and you’ll run over to them! That’s your group for the rest of the summer!” I was immediately relieved. I knew the plan and I was pumped.
He began listing off names using a megaphone. Each kid would run excitedly to the group they were assigned to as group cheered and welcome them. As more and more names were listed and more and more groups cheered, I could barely contain my eagerness to be welcomed into my own group and be able to feel special, too. It had occurred to me that it was odd that I hadn’t been called yet considering I usually come first alphabetically, whether by first name or last name, “But look how happy everyone is! I’ll be that happy soon, too.” The group began to thin. “I mean I’m definitely supposed to be here, right? It’s Monday and mommy said Monday we were starting camp. And my sister is here too. And daddy dropped us off. So, yeah, I’m definitely supposed to be here. Unless they meant to drop me somewhere else and got confused? Or maybe I didn’t understand them! Maybe I was supposed to stay in the car! My sister is looking at me. Does that mean I did something stupid and she knows it? Oh boy I don’t know if I’m supposed to be here….”
And then it was just the two of us.
“What are your names?” someone said. I’m sure my sister answered them because we started walking somewhere else with them but I couldn’t hear anything over the sound of every single organ in my body trying to exit out of my mouth in a disorderly fashion.
Eventually they somehow got my mother on the phone and though I could only hear the camp staff’s side of the conversation and I was like 7 and don’t remember much, I will use my educated imagination and say it went something to the effect of:
Camp: Hello this is camp why are you children here?
Mom: Hello camp, this is Mom. What the fuck are you talking about?
Camp: Hello Mom. Your children are not on our list.
Mom: Hello, Camp. That’s news to me since I signed them up weeks ago and gave you money, you fucking shit heads.
Camp: I am sorry, Mom. You are right.
Mom: I know, Camp.
Camp: We will put them in groups now.
Mom: Good. Probably now they’ll be the weirdos because the other kids have had like an extra half hour to bond and have a fully formed in-group mentality and my children will now be seen as outsiders who must be thwarted. Call me please if my children are murdered.
Camp: Roger. Have a nice day.
I went on to have a perfectly fine summer, but this was the beginning of an entire life of being the exception to every system I come into contact with.
Years later, I became a counselor at that same camp. Originally we had a clock-in system where we would just write down our names and arrival times. Eventually, they wanted something more high-tech that would hold us more accountable so they introduced a fingerprint scanning system. One day after work we were all to come into the office and scan our prints so they could set up our clock-in account. The line moved pretty quickly since the process was pretty easy. Then I got to the front.
Camp: Just put your finger down and when it flashes it means it’s got your print and you’re good to go.
Me: It’s not flashing.
Camp: Hm…lift it up and try again?
Me: No.
Camp: Is your finger really cold? Maybe warm it up?
Me: It’s still not working.
Camp: Okay well let’s figure it out tomorrow so everyone else can go home.
They tried to get my fingerprint on file for the next few weeks but eventually gave up. Every morning, they put a clip board next to the fingerprint scanner so that I could sign in on paper. Every day, I dreaded having to explain to whoever was in front of or behind me why I couldn’t do the finger scanner. To this day, I remain the only one in the history of camp who had to continue paper sign-ins.
My freshman year of high school, I was on the dance team. I had danced all of my life up to that point so it was a natural choice for me. But I found that I didn’t love it as much as I used to and decided after the first semester that I would drop dance and try theatre instead. Though I was leaving, I was extremely proud of the work I had done in the first semester. All the dancers worked well together as a group and it is such a rare feeling to feel part of anything in high school. For the winter festival, we did a performance on pointe that everyone kept telling me I was amazing in. It was taped and our pictures would be featured in the yearbook. It was one of the first times I remember feeling accomplished and recognized. When the yearbook finally came, due to the angle of the picture, the only part of me you could see was my foot. I went to look for my name next to the picture and it wasn’t there. The yearbook staff had labeled the picture based off of who they could see and not from an official list of who was on the team. The school completely lost the tape from the winter performance that year. There is no record of me ever having danced at my high school.
The summer of that year, while working at the aforementioned camp, I had to take a week off to get my appendix removed (for the full story, see my page). It was such an ordeal but since I’m usually able to have a good sense of humor about shitty things, I was kind of entertained by the whole thing. When they told us that they send every patient home with the internal video footage from their surgery, I was so excited. There was no way I wasn’t having everyone over for a viewing party of my internal organs. Once I was all stitched up and well enough to go home, they handed me my forms, my aftercare instructions, and a DVD, but:
Hospital: For some reason we weren’t able to save the footage from your surgery, but everyone basically look the same on the inside and we didn’t want to send you home empty handed so here’s a copy of someone else’s surgery.
There’s a clinic I go to when I don’t feel like bothering my regular doctor with my hypochondria, and they’re often doing blood work for me. At first they would just call or email with results when they came in, but then they set up an online system where each client could log on to see their results and keep track of all of their records. I won’t insult your intelligence. We all know where this is going. No matter how many times I try their login procedure, it always says I have an existing account and no one in their office can figure out how to access the account the system is referring to. They kept giving me the instruction slips every time in hopes that the registration code would work. It never did. Now I have an actual email relationship with the lab and they know they have to email me every time they get my results in. To my knowledge, I am the only client they have to do this for.
I won’t bore you with every single example, because they’re all pretty much the same. My account doesn’t work or I have the “in extremely rare cases” reactions to a lot of medications or the DMV somehow created two titles to my car so I had to go through a year long process of linking the two titles so I could become the owner of the vehicle, which they’d never seen before.
I’ve come to expect it at this point. There have been times where I’ve genuinely wondered whether I’m actually a person or if I’m some weird solid ghost who manages to live a mostly human life but for whom no human systems work properly. Other times, I felt maybe I was just invisible and only imagining the conversations I was having. Sometimes I’ll stop a friend mid conversation to say “I’m real, right?” Because obviously my extremely urgent and realistic fear of not being a human person is more important than whatever my friend was in the middle of enthusiastically telling me.
I was thinking about this the other while in bed. “I just don’t understand why I can’t be normal. I want to know what to expect when I go to the doctor. I want to have the same easy system as everyone else. I don’t want to be in limbo with every institution because they couldn’t make me fit into their protocol. Why do I have to always be the fucking exception? Why are my circumstances always deemed ‘exceptional.'”
I sat bold upright.
There are two definitions for exceptional:
- unusual; not typical.
- unusually good; outstanding.
I’m not invisible. I’m fucking exceptional.
I’ve wanted to be special my entire life. I’ve been spending all this time lamenting the irritation and anxiety that comes with having to do things my own way, when really this is just the most annoyingly big sign that I am obnoxiously special. I don’t want to have everyone else’s life. When people ask me where I see myself in five years I say “I don’t know and I don’t want to know.” I want a life of surprises and adventures. I should stop bitching about the surprises I’m already getting.
Okay I lied. According to the google dictionary, there’s actually a third definition to exceptional:
3. (of a child) mentally or physically disabled so as to require special schooling.
But that doesn’t fit well with my story. I’m including it anyways because I don’t have to follow your stupid writing rules. I have a video of someone else’s appendix surgery. Do you?
Midnight Oatmeal 